When the 2 -year -old child enters cardiac arrest, parents take measures that save lives
Most parents of young children care about sleep habits and summary, but heart failure is not usually a concern.
He was certainly not on Thomanda’s radar when his 2 -year -old son entered a sudden cardiac arrest in the middle of the house of Illinois.
When the boy woke up screaming, his parents ran to the room. (See the video at the top of this article).
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“Listening to him screaming was alarming, since he usually slept deeply, and it was a horrible scream,” Stephanie Thomas said to News Digital.
“When I entered his room, he continued screaming and then face in his crib.”

Stephanie’s 2 -year -old son and Kris Thomas entered a sudden cardiac arrest in the middle of Illinois. (Stephanie Thomas/OSF Healthcare)
At first, the couple thought that their son was only having a night terror, so Stephanie Thomas, a clinical dietitian at the OSF Healthcare Children’s Hospital of Illinois, sat next to her son’s cradle with her hand on her back, trying to calm him.
“When he finally settled, I could feel that his breathing stopped slowly,” he recalled. “I picked it up from his crib and put it on the ground. With him I did not answer, I felt by pulse and started RCP.”
“I was petrified and confused about how my apparently healthy 2 -year -old son was in this situation.”
She added: “I was petrified and confused about how my seemingly healthy girl was in this situation.”
While RCP, her husband, Kris Thomas, called 911.
Emergency responders led the child to OSF Healthcare. After 11 days of testing, he was diagnosed with Brugada syndrome, a very rare heart condition that can cause sudden cardiac arrest and death.

After 11 days of testing, the 2 -year -old boy was diagnosed with a very rare heart condition that can cause sudden cardiac arrest and death. (Stephanie Thomas/OSF Healthcare)
Although there may be some signs of brugate syndrome, such as fainting or fainting, the condition is often not discovered until cardiac arrest occurs.
The son of Thomase had a similar incident approximately one month before cardiac arrest, which now believes that he could have been his first episode.
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“He woke up in the middle of the night with a horrible scream, had a bit of panting and was difficult to calm,” Stephanie recalled. “It was just a short period, and once it calmed down, it seemed” normal. “We assumed it was a night terror.”
As Brugada Syndrome is often inherited, both parents were evaluated by genetic anomalies, but it was determined that their child’s syndrome is a “mosaic defect”, which is when there are two or more genetically different sets of cells in the body.

“Our son acts and seems healthy more than 99% of the time, until his heart gets into an arrhythmia that his body and medications cannot handle on his own,” said Stephanie Thomas to News Digital. (Stephanie Thomas/OSF Healthcare)
The OSF team implemented the young man with an EV-ICD (extravascular implantable cardioverster defibrillator), which is placed outside the blood vessels of the heart. It is designed to detect and correct any abnormal heart rate.
This was the first time that the device was implemented in a child at such an early age, the hospital said in a press release.
From the first episode, the child has been hospitalized six times more. Every time an abnormal heart rate is detected, the EV-ICD offers a “shock that save life” to the child’s heart.
“Our son acts and seems healthy more than 99% of the time, until his heart gets into an arrhythmia that his body and medications cannot handle on his own,” said Stephanie Thomas to News Digital. “In these cases, he receives a shock from his ICD.”
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The child has been readmitted in the hospital due to arrhythmias and medication titration seven times from high initial, added his mother.
Sunita Ferns, MD, pediatric electrophysiologist of the OSF Healthcare Saint Francis Medical Center who is treating Thomanda’s son, said that his young patient is now “married to cardiology.”

The parents said it can be a challenge to navigate the episodes with a 2 -year -old boy who cannot understand what is happening. (Stephanie Thomas/OSF Healthcare)
“We constantly monitor these devices. If we see any arrhythmia in the background, despite the medication in which it is, we can offer you other technologies,” said Dr. Ferns in the OSF press release.
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“Ablative technologies can help modify the substrate, which is the tissue responsible for bad rhythm.”
To help control their arrhythmias, the child also takes a compound oral medication every six hours, which he will take for the rest of his life.
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The parents said it can be a challenge to navigate the episodes with a 2 -year -old boy who cannot understand what is happening.

The family now aims to raise awareness about the importance of receiving training in CPR, being alert to warning signals and establishing an emergency plan. (Stephanie Thomas/OSF Healthcare)
“The most difficult part is when he says things like, I can’t use the elephant blank because he surprised me,” said Stephanie Thomas. “It makes these associations between being surprised and the objects or places around it.”
There are specific triggers for the child’s arrhythmias, the family has learned, such as low -grade fevers and even minor diseases, such as a cold.
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“It is vital that we keep it as healthy as possible, which can be an active 2 -year challenge and [also] Having a 4 -year -old boy, “said the mother.
“We ensure that you stay up to date with vaccines and our whole family. We do everything possible to regulate any temperature.”
“It is vital that we keep it as healthy as possible.”
Thomass now aim to raise awareness about the importance of having training in CPR, be alert to warning signs and establish an emergency plan.
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As a medical care employee, Stephanie Thomas has maintained her basic life support (BLS) certification for more than 10 years.
“I’ve always said that I work with doctors and nurses, so I felt that this was something I would never use, but doctors and nurses were not in my house the night when my son entered a cardiac arrest, so he left me.”
Melissa Rudy is a senior health editor and a member of the lifestyle in News Digital. The advice of history can be sent to melissa.rudy@News.com.


